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REBECCA'S
PRESENTATION TO THE UNITED NATIONS Ad
Hoc Committee on the Rights and Dignity of Persons
With Disabilities.
Wednesday, August 3, 2005
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When Rebecca and her circle
think of
citizenship, they think of the Zulu word
“Ubuntu”. Loosely translated,
it means, ‘my humanity is inextricably
bound up in
your humanity’, or the idea that
we are
different so that we can know our need
for
one another. We are always led back to
this concept- “Ubuntu”- when
we think of
the wonderful impact Rebecca has had
and continues to have on the lives of
the
persons with whom she comes into
contact. Rebecca has been blessed
ironically, with Cerebral Palsy, and an
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intellectual disability which
makes her dependent on others for almost everything.
Despite this, Rebecca had led and continues to lead
a favoured life where she is an integral, functional,
and impactful member of her society. She represents
persons with disabilities who demand to invoke their
rights as citizens to be seen, heard, and allowed
to make meaningful contributions to the community.
Usually, when people see Rebecca, they do not initially
see her as being able to share and contribute. It
is not her physical limitations but rather an attitude
of unwillingness to see beyond them, that can bar
her from becoming a full citizen.
A part of being a whole society or a democratic society,
is making certain ALL voices are heard, and decisions
are made for the common good. However, some of our
society’s most vulnerable citizens are ignored.
Rebecca forces people to slow down to communicate
with her and this is a gift to the world… slowing
people down to the point where they have to listen
to those, otherwise ignored, voices. This guides us
in the direction of a good society; which is measured
by how people treat, listen deeply to, empathize and
interact with its most vulnerable members.
Rebecca’s school and later
work experience is a testament to how one person
can change the entire culture that exists around
them. Teachers, administrators, fellow students,
and co-workers always say that Rebecca’s mere
presence changes the very fabric of their relationships,
making them more collaborative, more compassionate,
and more intuitive to strategies that advantage
all persons.
Rebecca was fully included and integrated into the
regular classroom since elementary school and she
has had wonderful teachers who planned creatively
and effectively to cater to her learning needs.
Part of this was having Rebecca’s classmates
play critical roles in assisting her and helping
her teachers to create accommodations that would
be to her benefit as well. Not only did these youngsters
learn the importance of responsibility for others,
task commitment and community building, they also
gained from an educational perspective as well;
since teaching strategies used to assist Rebecca
helped all levels of learners. I remember when Rebecca
was in the eighth grade, she was out in the school
yard and some of the boys in her class were “skipping”
with her. She has always loved to watch children
skip so her classmates, when they were younger figured
that she could skip too if they just turned the
ropes back and forth over her head as she sat in
her wheel chair. It was amazing to see that even
in grade 8 when 14 year old boys are trying to assert
themselves in the stereotypical ways of young men,
that they exhibited such tenderness towards their
friend’s desire to play with them.
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| Rebecca
continues to disseminate citizenship education
in her pursuits as an adult. She has an
extremely vigorous calendar of commitments.
On Mondays she listens to Grade 1 students
read at her old elementary school. This
exercise helps the little ones gain confidence
in their reading ability. Rebecca cannot
speak and for the children this means
they are able to read freely with no expectation
of criticism, simply the reassurance of
a smiling face. Rebecca is also a facilitator
at the Royal Ontario Museum in the Bio-Diversity
Hands-On exhibit, helping people discover
things that they might otherwise not notice.
My daughter also brings hope and inspires
the vulnerable and dispossessed through
her own vulnerability, when she volunteers
at the Mustard Seed drop-in center with
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community kitchen, library, sewing room, etc. Salt
and Light TV. is another place that Rebecca contributes
her gifts. As well as helping with editing, her presence
reminds this catholic community who can sometimes
get wrapped up in the hustle and bustle of film making,
of the values that form the foundation of their faith.
Most inspiring to many, is the fact that Rebecca is
a dancer. She dances with the Spirit Movers liturgical
dance group and testifies to her strong faith using
this medium. How does a person who is non-verbal and
wheel chair bound living within the constraints of
others ideas and expectations of people with disabilities
do all these things? Her success in overcoming obstacles
is mainly due to the deep and committed relationships
she has developed with family, friends, her support
circle as well as collaboration with community groups
that she comes in contact with regularly such as the
church, schools and other venues. Her support circle,
who have been meeting regularly for the past 13 years,
help interpret her goals and dreams. Rebecca does
not speak, so those around her ensure that she has
many other ways to express her feelings and desires.
It is imperative that she have long term relationships,
both paid and unpaid who can help build the capacity
of the community to welcome her gifts. In return Rebecca
helps them create a better world for all. This is
citizenship, and Rebecca is an esteemed educator in
this regard.
Rebecca would like her video to be used as a call
to action, a call for justice for everyone who is
marginalized. As wonderful as Rebecca’s life
is, there are so many people who do not have such
a happy story and who continue to be held captive
by society’s fears, misunderstandings and prejudice.
The world needs their gifts now more than ever.
Rebecca and her circle would like this ad hoc committee
to call for an approach to reduce and eliminate discrimination
that goes beyond policy change and focuses on a rethinking
of the values and priorities that underpin our lives.
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